Research and Resources
Research from the 2022-2023 LEND Cohort
Current Practice of Cancer Predisposition Testing in Pediatric Patients with CNS Tumors
Authors:
Baylee Roy, Sara Knapke, Natasha Pillay-Smiley, Xue Zhang, Kate Queen, Rebecca Sisson
Creating and Enhancing Toolkit for Head Start Teachers, Staff and Parents’ to
Promote Child Development
Authors:
Tulika Prasad, MBA; Sarah Anderson, BS; Ramya Sri Lakshmi Adapa, MPH; Maria Luisa Beltran Quintero, MD; Brandi Forbes MSW, LSW; Karen Harpster, PhD, OTR\L, Karen Burkett, PhD, RN, PPCNP-BC
Perceptions of Accessibility and Inclusion within the Greater Cincinnati Region
Authors:
Elizabeth Aaron MA, Kara Ayers PhD, Kaitlyn Bigner PT, DPT, Greg Miller ADV, Katie Patrick MHSA, MS, OTR/L, Jennifer Smith PsyD, BCBA-D
Understanding the Needs and Services of those Transitioning to the Adult Healthcare System:
The Freeman Center
Authors:
Amie Duncan, PhD, Anne Tapia, LISW, Christy Gregg, CTRS, Griffin Engle, Lisa Gies, Joddy Kuhn, and Michelle Schroeder
EMPOWER Project: Substance Use & Pregnancy - Training Peer Supporters
Authors:
Amy Kerr, MA, MEd; Bethany Cooper, PsyM; Maddie Neubecker, BS; Samantha Pauley, OTR/L; Taeauna Felton; Angel Ehrenschwender, MPH; Steph Weber, PhD; & Nichole Nidey, PhD
Families’ Experience with the Path
to an Autism Diagnosis
Authors:
Allie Fisher, M.A., Kavya Kandarpa, M.S., Suma Kolla, D.O., Waleia Larkin, James Lynch, M.A., Maggie Michael, B.A., & Lisa Hunter, Ph.D
Examining Access to Low-Barrier Treatment for Pregnant People with Opioid Use Disorder
Authors:
RamyaSri Lakshmi Adapa, Beakal Amsalu, Angel Ehrenschwender, Christine Wilder, Nichole Nidey
Preparedness and Training of Genetic Counselors Practicing in Inpatient Settings
Authors:
Nelliann Mancl, BS, Melanie Myers, PhD, MS, LGC, Erin Miller, MS, LGC, Farrah Jackson, MS, CCRP, Kimberly Widmeyer, MS, LGC
Research from the 2021-2022 LEND Cohort
Implementation of Education and Advocacy Resources for Head Start Teachers, Staff, and Parents
Parent-to-Parent Networks: Systems that Optimally Support Parents of Deaf and Hard-of-Hearing Children
Evaluating computerized assessment of cognition in Down syndrome with caregiver administration
Access to Inclusion: Incorporating Family-Centered Beliefs in the Community
Families’ experiences with the path to an autism diagnosis
Timothy Freeman, MD, Center for Intellectual and Developmental Disabilities
Survey of Behavior across Sex and Lifespan in Individuals with Rubinstein-Taybi Syndrome
Genetic and clinical predictors of hearing loss among patients with CHARGE syndrome: A retrospective chart review
The explicit attitudes of genetic counselors towards individuals with disabilities
The Efficacy of Auditory Processing Disorder (APD) Interventions: Parent and Provider Perceptions
ACCESS TO INCLUSION: Developing Professional Standards for Community Settings
Neonatal Abstinence Syndrome Education Project SCOPE: Supporting Children of the Opioid Epidemic
Behavior Inventory for Down Syndrome (BIDS)
The Gendered Pay Gap in Genetic Counseling